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What say you? Say again? Say it in ASL!
About Me
- Thomas Withrow
- Me Deaf. Avid Dallas Cowboys fan! Enjoying moments with my lovely wife and wonderful mother, Heather, of our adorable kids - Skyler 3 yrs old boy Deaf and Anastasia 22 mos old girl CODA
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28 comments:
Wow, Thank you very much for sharing!! This is very informative.
What a story! The audiologist should have mentioned that your baby is now a "hearing-loss." It is a proper two words. So that way, the audiologists will take some tests further whether your baby is HoH or deaf.
I agree that the word "fail" is a strong word. However, they intend to avoid the words, "hearing-impaired" or "deaf". Some people do have their sentitvity over these issues. I can imagine that the audiologists are having some hard times dealing with the parents when they get upset or not.
White Ghost
Hi Thomas,
Good to know that you are a very proud dad of your own children!
I agree with you that people who work in health care have different views and always think deaf is defective and even failure.
I work with the Canadian HEaring Society and I have always emphasized that Deaf is nothing wrong and it is tough for them to accept. Some accept but some struggle and disagree.
Thanks for sharing with us!
Deafchip
Hey Emmit Smith fan (still?),
Wow...deaf means fail. Oh boy! Thanks for sharing. What a "world" we live in!
Remember me? Billy K.
Your experience is same as my parent when they have my brother and me as Deaf. I guess the history continues...
It is interesting that you mentioned the BOR situation. I have never heard of it until a Deaf person who has it mentioned that my son has it. I was like HUH? what?? My son "passed" the hearing test...But he has a hole in his right earlobe. What does that make him, I wonder? Will he lose his hearing?? Or is he able to hear in one hear and not another? I guess I will have to do my research. I havent had him to take another hearing test. I probably should. I just find it interesting since I am a 3rd generation of Deaf family and none of us have it.
Ouch. Typical mindset of these people. They see us as "impure," very sad and very wrong!
I'm sure dr meant "your son failed hearing test" not mean deaf is fail! Did doc use one word fail? well, common sense, your son failed hearing test. He did not pass hearing test ergo he is deaf. No big deal. Did he say your son will be a failure in life because your son is deaf? no. we deaf must stop have big chip on shoulder. smile
Hi,
I wanted to respond to Delanne Woodall's concern on BOR. I am fourth generation of deaf family and I have a deaf son that does not have BOR but my CODA son has it. I had a genetic consultant checking on my and my wife's family history and classifed ours with BOR which the pits did not mean that the child is deaf when s/he is born. They can be a carrier until they have children with a 50% chance of having deaf children. BOR is just showing the symtoms of possibilities in ourselves and our children of what or when to expected.
I had a similar experience that you had. We brought an interpreter with us because she is our friend. She interpreted everything she "overheard" in the doctor's office in Children's Hospital where my daughter Vivienne was tested. The doctor was alerting different departments about my daughter because he was about to tell us the parents about Vivienne. He used the terms like "gone", "null", and, yes, "failed" when he called different people in the hospital. When he came to talk to us, he was sorrowful that the tests showed some hearing loss and referred us to some other people to discuss amplification and language development. When I asked about American Sign Language, he actually dropped his pen, not knowing what to discuss the language and culture of the Deaf. Anyway, we went ahead to meet with different people in Children's Hospital. My goodness! They told me it's awful and wrong to be Deaf!
Joey and you shared the same experience I had 20 years ago this year. It's amazing!
Thank you! I enjoyed to hear your story. It is sad that some hearing audiologists are so ignorant. Not only that State is CHAMP ignorant. Why? They required to have two words: "failed" and "passed." If they don't know about Deaf culture, then I will write down "FAILED." Why? They are stupid.
LOL Toby! They must get a taste of that too.
Cowboys-hater here!
When your audiologist mentioned about the results, she should smile when she mention that your baby is Deaf. On other note, the same thing that she should be frowned when she told you that your daughter is hearing. Would that make you feel better because she understand Deaf' and its culture?
Your Redskins Friend,
NavyBeagle
Here is my comment about your video: http://medeafyes.com/?p=7
- Ron -
Good VLog!
I understand how you feels about being "failed". They gave you a wrong impressive. They should use a proper words to tell you or any parents. In some ways, they are professional in a medical words properly in the file, but they need to improve their simple communicate methods with all patients without scare or cause them confusion.
Thanks for sharing this with us.
Some audiologist can be very clod and ignorant. Saying "failed" is a very negative word audiologists and doctors give to parents.
What does "BOR" stand for? I've never heard it. Thanks
Glad u bring it up
In FACT Dr was smart use " FAIL "
why?? When Dr tell hearing parents
tell them ur babies are Fail the hear screen test. Of course they will upset and Dr will tell parents
Don't worry ur baby will PASS the test. want know how??? Babies need get CI That how thier plan
We should start something about it
tell them stop use Fail and Pass the test
Just tell them ur kids hear welll or DEAF something like that with soft word not STRONG
Otherwsie soemtime i think funny when Dr told us our kids fail
to me KIDS pass the test
Hi
I have 4 kids.
anyway my 3rd baby born 8 weeks early
Dr say will do the hear screen and let us know and will have discuss
if baby deaf do etc
I told Dr. If my baby pass the hear. I would like have baby CI from arm so Baby can sign better
WOW see DR feel lousyand dont know what to say but I told them just kidding We will still give them full love no matter Deaf or hear
Dr say wow good one
U try do that Dr see what they say about hear baby have CI on thier arm so leave us deaf babies alone
Wow! Yes, I agreed with you that "failed" is very strong negative word!
When my Deaf son was born, he was tested, the audiologist told me and my Deaf husband, "I am sorry that I am not sure that your baby do have some hearing." My husband did blow his mind up and insulted her for a being "Mad Scientist"!! Because we didn't know that they did already test our baby's hearing while I was in heavy medication from the surgery!
drmzz, yeah! They taste their own medication.
Wow. I agree with you- fail is way too strong word. I learn something new about this.
Thanks for sharing this with the Deaf world. :)
The audiologist should have shown more sensitivity toward the parents.
Excellent! Thank you for sharing an inspiring story with us. Wake up, NAD! Listen to what this guy said.
AlNoll
Yeah, its vice versa for deaf parents who have hearing children, people exclaim at how happy they are when they find out that the babies are hearing. It does not make deaf parents feel good about themselves as it reflects back to their deafness. Audiologists, doctors and other professionals need to be extra sensitive when it comes to sharing news to parents about their child and disability. I wonder what they say to parents who have a disabled baby like if maybe the baby is mentally retarded or whatever. Do they project negativity and hopelessness to these parents? Me wonder. It is no wonder why parents have a hard time recovering from their grief when they could have been given with the information that their child will do well regardless.
How true it is, professional worker must be educated and learn to say proper word for newly born parents. Fail is very powerful word and have strong impact on people's feeling. Deaf can do anything equal just as good as hearing person can. Thanks for your experiences.
How true it is, word can be very powerful impact on people's feeling. Professional worker must be educated to say the proper word for newly born parents. Deaf can be equal as the hearing. Never underestimate them.
Wow! Thanks for sharing your experience with us.
By words, "pass" or "fail" are not acceptable and not properly to address toward parents, either deaf or hearing. Fail is a strong word.
Better to describe in words, deaf or hearing in a properly way. IMO
I learn something new. :-)
JungleForest
I am an audiologist and I am always happy for deaf parents when the babies turn out to me deaf also. They are so joyful.
Also it is never EVER "fail". The correct word, is "refer".
This is because the baby needs more testing. A child can "refer" a test and ultimately be hearing because there was wax or fluid in the ears or the earphone wasn't properly inserted.
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